Petulka - A 30.9.2024 hemos recaudado 25000 coronas para Petulka

Peťulka celebrated his 4th birthday this year. Last year, doctors diagnosed him with Duchenne Muscular Dystrophy (DMD). This disease is very progressive and incurable. Essentially, his body cannot produce the protein dystrophin, which is necessary for muscle function. The outlook for Peťulka’s future is not at all encouraging. According to doctors, by the time he starts school, he will be in a wheelchair. Over time, this disease will take away his ability to walk, all movement (he will need 24-hour care), and eventually even his ability to breathe and his heart’s ability to beat. This condition also affects brain development. Péťa does not speak and is showing signs of autism spectrum disorder.

At this moment, the disease is only slightly affecting his walking and communication. He trips, walks upstairs with support from his other leg, has difficulty getting up from the floor, and tires quickly. That is why we often use a medical stroller. We regularly visit a physiotherapist, clinical speech therapist, and also go for hippotherapy, all based on recommendations from medical specialists, in an effort to improve Péťa’s future. Péťa primarily communicates by pointing and babbling. When he needs something, he points at it. Sometimes, he manages to say the word in his own "language" without pointing.

My priority is to create a safe home environment for my son. The whole apartment needs to be renovated to make it wheelchair accessible. This includes changing the floors (to handle the weight of the wheelchair), removing thresholds, widening door frames, adjusting the kitchen, but above all, adjusting the toilet and bathroom. As a single mother, this is a huge financial burden, which is why I am trying to raise funds and prepare for the inevitable.